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Peer Reviewed Publications

Tigerlily engages in research projects with top leaders in the industry, academia, and with public health professionals, to build a rigorous dissemination and publication record.

Here are some of the recent peer reviewed publications, abstracts, posters and white papers by POWER Center and Tigerlily staff* (Tigerlily staff names in bold):

List of Peer reviewed manuscripts, posters, abstracts :

2025

Northcott, Carrie, Abigail Newell, Soohyun Hwang, Josh Coulter, Lewis Kopenhafer, Mar Santamaria, Isik Karahanoglu, Martine C. Maculaitis, Joseph C. Cappelleri, Kathleen Beusterien, Maria Gonzalo, Erica Fortune, Claire Saxton, Elif Andac-Jones and Brett Hauber. “The importance of digital health technology–derived physical activity to adult patients with cancer and cachexia”. Presented at the Annual International Conference on Frailty and Sarcopenia Research (ICFSR) in March 2025. 

2024

Andac-Jones, Elif, A. Newell, M. Gonzalo, and E. Szamreta. 2024. “Disparate Barriers to Care Among Ovarian Cancer Patients in Managing Their Sleep Disturbance and Fatigue.” Value in Health 27(6):S308. doi: 10.1016/j.jval.2024.03.1947. 

Andac-Jones, Elif, Abigail Newell, M. Claire Saxton, Maria Belen Gonzalo, and Elizabeth A. Szamreta. 2024. “Suggestion for Customized PROMIS Measurements of Sleep Disturbance and Fatigue for Patients with Ovarian Cancer.” JCO Oncology Practice 20(10_suppl):239–239. doi: 10.1200/OP.2024.20.10_suppl.239. 

Fortune, Erica, Abigail Newell, Maria Gonzalo, Madyson Popalis, and Elif Andac-Jones. 2024. “HSR24-131: Patient Experiences and Perceptions of Biomarker Testing in AML and CML: A Qualitative Analysis.” Journal of the National Comprehensive Cancer Network 22(2.5):HSR24-131. doi: 10.6004/jnccn.2023.7265. 

Karmo, Maimah, Katherine Cornish, Virginia Leach, and Jeanne Regnante. 2024. “Patients Drive Authentic Trusted Solutions for Inclusive Clinical Trials.” Current Breast Cancer Reports 16(1):76–83. doi: 10.1007/s12609-024-00526-5. 

Newell, Abigail, Elizabeth A. Szamreta, Erica E. Fortune, Maria Belen Gonzalo, M. Claire Saxton, and Elif Andac-Jones. 2024. “Sleep Disturbance and Fatigue in Patients with Ovarian Cancer during Chemotherapy and Surgery Compared to PARPi Maintenance Therapy.” Journal of Clinical Oncology 42(16_suppl):e23248–e23248. doi: 10.1200/JCO.2024.42.16_suppl.e23248. 

Saxton, M. Claire, Richa Ruwala, Alyssa Jaisle, Kirstin Fearnley, and Elif Andac-Jones. 2024. “Head and Neck Cancer Survivors: Long-Term Nutrition Impact Symptoms, Eating Problems, and Barriers to Care Impact Psychosocial Health.” Journal of Clinical Oncology 42(16_suppl):12044–12044. doi: 10.1200/JCO.2024.42.16_suppl.12044. 

Swain, Sandra M., Carlos H. Barrios Sr, Giuseppe Curigliano, Nadia Harbeck, Chiun-Sheng Huang, Maimah Karmo, Sherene Loi, Sara M. Tolaney, Nicholas C. Turner, Annie Collier, Volkmar Henschel, Aneta Swat, Simon Warburton, Fabiola Amair-Pinedo, and Javier Cortes. 2024. “INAVO122: A Phase III Study of Maintenance Inavolisib or Placebo + Pertuzumab + Trastuzumab Following Induction with Pertuzumab + Trastuzumab + a Taxane in Patients (Pts) with PIK3CA-Mutated, HER2-Positive Advanced Breast Cancer (HER2+ aBC).” Journal of Clinical Oncology. doi: 10.1200/JCO.2024.42.16_suppl.TPS1124. 

Vidal, L., Z. Dlamini, S. Qian, P. Rishi, M. Karmo, N. Joglekar, S. Abedin, R. A. Previs, C. Orbegoso, C. Joshi, H. A. Azim, H. Karkaria, M. Harris, R. Mehrotra, M. Berraondo, G. Werutsky, S. Gupta, N. Niikura, I. Chico, and K. S. Saini. 2024. “Equitable Inclusion of Diverse Populations in Oncology Clinical Trials: Deterrents and Drivers.” ESMO Open 9(5):103373. doi: 10.1016/j.esmoop.2024.103373. 

2023

Andac-Jones, Elif, Maria B. Gonzalo, Gail Kelly, and Susan Weldon. 2023. “Impact of Integrative Therapies on Patients with Metastatic Breast Cancer.” Cancer Research 83(5_Supplement):P5-07-15-P5-07–15. doi: 10.1158/1538-7445.Sabcs22-p5-07-15. 

Andac-Jones, Elif, Maria Belen Gonzalo, G. Thomas Wilson, Rachel Saks, and Nicholas James Power. 2023. “Understanding Barriers to LGBTQ+ Cancer Clinical Trial Participation: A Qualitative Inquiry.” Journal of Clinical Oncology 41(16_suppl):e18675–e18675. doi: 10.1200/JCO.2023.41.16_suppl.e18675. 

Andac-Jones, Elif, Abigail Newell, Elizabeth A. Szamreta, Maria Belen Gonzalo, Juliette Hoffman, and Matthew Monberg. 2023. “Relative and Functioning Sleep Disturbance and Fatigue: Impact on Patients with Ovarian Cancer.” Journal of Clinical Oncology 41(16_suppl):e24102–e24102. doi: 10.1200/JCO.2023.41.16_suppl.e24102. 

Cornish, Katherine, Mary Stober Murray, Maimah Karmo, Jeanne Regnante, and Virginia Leach. 2023. “Use of a Novel Healthtech Platform to Record Patient-Reported Needs in Real Time.” Cancer Epidemiology, Biomarkers & Prevention 32(12_Supplement):A033. doi: 10.1158/1538-7755.DISP23-A033. 

Leach, Virginia. 2023. “Disparities in Delayed Diagnosis and Pain Management among African American Women with Breast Cancer.” JCO Global Oncology 9(Supplement_1):102–102. doi: 10.1200/GO.2023.9.Supplement_1.102. 

Leach, Virginia, and Jacqueline Selymes. 2023. “Capturing Life in Color: Documenting the Lived Experiences of Advanced Breast Cancer Patients.” The Breast 71:S37. doi: 10.1016/S0960-9776(23)00635-5. 

Regnante, Jeanne, Mandi L. Pratt-Chapman, Kristin Bodiford, Regina Hampton, Virginia Leach, Glenda Maria Delgado Ramos, Chika Nwachukwu, Adrienne Tilbor, and Maimah Karmo. 2023. “The Case for Acceleration of Prospective Multi- Stakeholder Led Community-Based Research in Young Black Women with Triple Negative Breast Cancer (TNBC).” Journal of Clinical Oncology 41(16_suppl):1089–1089. doi: 10.1200/JCO.2023.41.16_suppl.1089. 

Richardson-Parry, Afua, Carole Baas, Shaantanu Donde, Bianca Ferraiolo, Maimah Karmo, Zorana Maravic, Lars Münter, Ignacio Ricci-Cabello, Mitchell Silva, Stacey Tinianov, Jose M. Valderas, Seth Woodruff, and Joris van Vugt. 2023. “Interventions to Reduce Cancer Screening Inequities: The Perspective and Role of Patients, Advocacy Groups, and Empowerment Organizations.” International Journal for Equity in Health 22(1):19. doi: 10.1186/s12939-023-01841-6. 

Wilson II, Thomas, Saks, Rachel, Newell, Abigail, Hoffman, Juliette, and Andac-Jones, Elif. 2023. “Talking about Cachexia: Uniting Patient, Survivor, Caregiver, and Health Care Professional Voices to Create an Accessible Cachexia Lexicon.” Journal of Cancer Education 38(1):1–50. doi: 10.1007/s13187-023-02359-9.

2022

Anampa-Guzmán, Andrea, Janet Freeman-Daily, Michael Fisch, Emil Lou, Nathan A. Pennell, Corrie A. Painter, Dorinda Sparacio, Mark A. Lewis, Maimah Karmo, Patricia F. Anderson, Stephanie L. Graff, and for the Collaboration for Outcomes using Social Media in Oncology. 2022. “The Rise of the Expert Patient in Cancer: From Backseat Passenger to Co-Navigator.” JCO Oncology Practice 18(8):578–83. doi: 10.1200/OP.21.00763. 

Florez, Narjust, Maimah Karmo, Sara Beltrán Ponce, Maura M. Barry, Elizabeth Henry, Matthew S. Katz, Don S. Dizon, Heather M. Hylton, and for the Collaboration for Outcomes using Social Media in Oncology (COSMO). 2022. “Social Media and the Quest for Equity and Diversity in Oncology: On Safe Spaces and the Concept of the Public Physician.” JCO Oncology Practice 18(8):572–77. doi: 10.1200/OP.21.00762. 

Karmo, Maimah, and Amy Pierre. 2022. “Pull Up a Seat: Engaging Patients as Empowered Partners in Health Equity Transformation.” Journal of the Advanced Practitioner in Oncology 13(3):202–4. doi: 10.6004/jadpro.2022.13.3.3. 

May 23, 2022 – Pull Up a Seat: Engaging Patients as Empowered Partners in Health Equity Transformation 

July 14, 2022 – Social Media and the Quest for Equity and Diversity in Oncology: On Safe Spaces and the Concept of the Public Physician 

2019

Urkmez, Esra, Elif Andac-Jones, David Cibula, Denis Querleu, Michael J. Halaska, Daniel Driak, Jalid Sehouli, Jacek P. Grabowski, Gulhan Inci, Kamil Zalewski, Lucas Minig, Cristina Zorrero, Muzaffer Sancı, Murat Alan, Jonathan A. Ledermann, Christina Fotopoulou, and Murat Gultekin. 2019. “Perceptions, Expectations, and Experiences of Gynecological Cancer Patients: A Pan-European ESGO-ENGAGe Survey.” International Journal of Gynecological Cancer 29(9):1425–30. doi: 10.1136/ijgc-2019-000567.

Under review or forthcoming: 

Andac-Jones, Elif, M. Claire Saxton, Daniel M. Geynisman, Ayse Akincigil. “Prior Authorization and Step Therapy Practices in Oncology: Potential Payer Cost Savings Not Found in Real Word Data”. Under review at The Oncologist. 

Newell, Abigail, Elif Andac-Jones, Maria Gonzalo, Alexi A. Wright, Oxana Palesh, Erica E. Fortune, Elizabeth Szamreta. “Patients with Advanced Ovarian Cancer and their Experiences and Perceptions of Sleep Disturbance and Fatigue Across the Treatment Trajectory: A qualitative study”. Under review at Gynecologic Oncology 

Northcott, Carrie, Abigail Newell, Soohyun Hwang, Josh Coulter, Lewis Kopenhafer, Mar Santamaria, Isik Karahanoglu, Martine C. Maculaitis, Joseph C. Cappelleri, Kathleen Beusterien, Maria Gonzalo, Erica Fortune, Claire Saxton, Elif Andac-Jones and Brett Hauber. “Meaningful changes in the ability to perform physical activities for patients with cancer and cachexia”. Under review at AACR Cancer Research